Support Starter Kit - Pilot Program

Support Starter Kit Pilot Program

Support Starter Kit Overview

After a cancer diagnosis, young adult patients and their supporters often face uncertainty about what is ahead, what support is available, and often don’t feel comfortable asking for or offering support.  b-present collaborated with AYA cancer community survivors, supporters, health professionals, and researchers to design support boxes that address these challenges early in the cancer support experience. The boxes contain resources and activities thoughtfully curated to empower patients and their supporters to stay connected during a challenging time.

How the Pilot Program Works

Thanks to the generous support of the I’m Not Done Yet Foundation, 50 starter kit boxes (25 for patients and 25 for supporters) have been provided to partner hospitals for distribution to young adult patients and their designated supporters.

Box Distribution Guidelines

  • Select patients (18+): Identify young adult patients likely to participate in the feedback process.
  • Deliver boxes in pairs: One Moxie Box -> patient and one Rally Box -> patient’s designated supporter (ensure box 3-digit numbers match – e.g. MB-001 and RB-001)
  • Log distribution details: Note box number, distro date and patient/supporter name
  • Emphasize the importance of providing feedback: Their input is important to pilot program success.

What’s Inside the Kits?

  • Welcome Letter: Designed by Chelsey Gomez at @OhYoureSoTough and written in the voice of YA patient or supporter who gets it
  • Helpful Resources: A Supporter Roadmap, Elephants and Tea Friendship edition, supplemental guides, worksheets and tips
  • Activities to encourage connection:  Including friendship bracelet kits, conversation starters, fun bingo cards, and Bestie Bucket List planners
  • Cards to inspire, connect, support, and express gratitude: Affirmation cards, notecards, empathy cards, fill in vouchers and cards, notepads, and a phone timeout pouch to promote distraction-free moments
  • Mementos: Kendra Scott friendship bracelets
  • Food/transportation Gift Card: A $25 Uber/UberEATS gift card

Feedback Process

Patient and supporter feedback is crucial for assessing value and refining future editions. Participants are asked to complete three brief surveys over the month following kit receipt. A postcard with a QR code linking them to the survey page is in each box. Total time to complete all 3 surveys is about 15 minutes. As a thank you for their time, participants will receive a $50 eGift card once they have completed all 3 surveys. They will receive email reminders when it is time to take the subsequent surveys (complete with survey link).

Privacy & Participation

All survey data is collected using a unique kit ID number. Participants provide an email address only for survey reminders and eGift card distribution, with no further emails unless they opt-in for updates via our website. Data will be anonymized, and no personal information will be associated with the final summary of the survey feedback. We do not share personal data with third parties.

Questions or Feedback?

We welcome your input! Please reach out with any questions or suggestions at [email protected]. Thank you for helping us make a difference through the Support Starter Kit Pilot Program.

View contents of Moxie box View contents of Rally box

Thanks to Our Partners and Sponsors

A heartfelt thank you to our partner hospitals and AYA community advisors who contributed to this labor of love, and a special shoutout to our generous sponsors and partners: I’m Not Done Yet Foundation, Chelsey Gomez, Elephants and Tea, Kendra Scott, Em & Friends, and Knock Knock. Thank you for helping us ensure that young adults feel connected and supported after a cancer diagnosis. We are stronger together.