Cancer Rebellion Movie Screening Recap

You’ve probably seen movies like 50/50 or The Fault in Our Stars, but what is it really like to have cancer as a teenager? Hernan Barangan, the director and producer of the new documentary, Cancer Rebellion, has experienced it firsthand.

On July 11th, as part of our b-aware program, we hosted a viewing of Cancer Rebellion at Del Mar’s Powerhouse Park Community Center in San Diego. In addition to the film, guests enjoyed a sunset social at the beach with dinner and drinks, plus an exclusive Q&A with Hernan following the screening.

At 15, Hernan was diagnosed with Acute Myeloid Leukemia (AML) and over the next two years, became pretty accustomed to hospital beds. To pass the time, he started watching movies and films. After ultimately beating cancer and finishing high school, Hernan began to think about what’s next. Drawing on his newfound interest, he decided to pursue filmmaking and went on to study film and theatre at the University of California, Santa Cruz.

After graduating from college, he worked on numerous music videos, commercials and films, but knew he wanted to revisit and create awareness around young adults with cancer. He was upset with how movies got cancer all wrong and wanted to portray it the right way. The idea for Cancer Rebellion was born.

Hernan decided to embark on a yearlong journey to all 50 states to document the stories of other young adults who had also been diagnosed with cancer in their youth. He wanted to deliver a story of unity stating “a story told in numbers is stronger than one told alone.”

A clear message of the film is that each of the cancer patients felt isolated at times. Hernan conveys some of those tough moments, like young adult patients being stuck in between pediatrics and adult hospital systems when it comes to treatment. They often find themselves feeling out of place among the superhero wallpaper and children’s tricycle races.

Many mentioned they never saw another teenager, being surrounded only by toddlers and doctors. While their friend’s problems were bad hair days and prom dates, they were dealing with chemo and having no hair at all.

“When I got cancer, I felt lost and alone. It’s a feeling that stuck with me for years after my battle. To explore my own experience, I film the stories of teen and young adult cancer fighters. They tell me about their triumphs and toughest times.” —Hernan Barangan

This documentary wasn’t just a tearjerker. Throughout the film, Hernan can’t help but show his comedic personality and genuine love for life. From “using the cancer card” to avoid a speeding ticket to legally driving 200mph in a Formula 1 racecar alongside racing legend Mario Andretti, this film is jammed packed with entertainment.

I won’t give away any more. Instead, go check out Cancer Rebellion for yourself, which is available now on iTunes & Amazon.

A huge ‘thank you’ to Director Hernan Barangan, and to all of our special guests who joined us for a Cancer Rebellion. We hope you left feeling just as inspired and empowered as we did. Whether you are a cancer patient, survivor, supporter, or simply interested in learning more, this documentary is a must-see.

b-there User Community Review Underway

In June, b-present Foundation met with two cancer support groups to seek volunteer evaluators for our b-there online connection and support tool. First, we met with San Diego Rady Children’s Hospital Some of My Best Friends are Bald (SOMBFAB).

The following week we visited Stanford to meet with the Adolescent and Young Adult Patient & Family Advisory Council (SAYAC PFAC).

We are excited to have 12 volunteers so far! Our goal is to get input from a representative cross-section of users (cancer survivor peer groups, supporters, medical professionals, and the research community). It is only with this diversity of perspectives that we can ensure we have created a tool that meets the needs of the community we are trying to serve in the best way possible.

We are conducting the tool review in two phases:

Phase One: Our first review of the tool will focus on design, features, and ease of use of the prototype tool. On July 12, packets were distributed to our volunteer evaluators, and responses will be coming in over the next two months. After this first phase of testing, we will have a user workshop to discuss the findings and prioritize updates.

Phase Two: After the recommended software changes are implemented and validated, we will conduct our second phase of the review process. During this phase, volunteers will evaluate the utility and impact of the updated tool on overall patient/supporter interactions, connection, and support.

User input is important to us, and we are looking forward to what the community has to say. If you are a cancer survivor, supporter, researcher or medical professional interested in receiving more information or being an evaluator, please contact us. Thank you for your interest and your support.

Stay tuned! We will provide another update when our first phase review is complete.