What Do I Say to Someone With Cancer?

You just got the call that your friend has cancer. If you are a young adult, this may be the first time you personally know someone your age that has cancer. If that’s the case, you probably have no idea what to say or how to interact. We’re here to help you find the answers so you can be the supportive friend they need during this hard time.

 

Crush the stigma

First of all, cancer places a stigma on conversations. The perception of cancer, what it means for the future, and what it physically and mentally does to a person can sometimes make others feel uncomfortable talking to the person diagnosed. The reality is your friend has not changed as a person, so remember to speak to them the same way you did before their diagnosis. The more you change how you interact with your friend, the more they are reminded that life is different, and they have cancer. The more you filter your conversation, the more isolated and disconnected they will feel to you and the outside world. 

Every cancer experience is different, and there will be temporary changes to your friend’s physical and emotional state. Take these into consideration, but remember to stay authentic to your relationship. You won’t be giving your friend the escape and normalcy they need if you are suddenly treating them differently, holding back, acting awkward, over-filtering, or just saying weird things that you would never have said if they didn’t have cancer. 

 

 

Here are a few things to remember:

 

  • Be present, not perfect. Avoid letting your fear of making a mistake keep you away. Nobody is perfect, and missteps will happen. It is part of being human. This is a new situation for both of you, and there will be plenty of times where both of you don’t know what to do or say. 

 

  • Be flexible and meet them where they are physically and emotionally each day. It is always a good idea to check-in. Asking your friend, “What do you feel like doing today?” will help you know how to connect (tone and energy), and what to discuss (or save for another day).

 

  • If you visit in person, turn your phone off and put it aside so you are not distracted. Don’t be the person that visits, but spends more time looking at their phone than the person they are visiting.

 

  • If a misstep happens, acknowledge it and be sure to ask for forgiveness or be willing to forgive. Life is too short to stay angry.  

 

  • Sometimes having an activity to focus on can neutralize the stress of what to say and ease the conversation.

 

  • Let your friend initiate private or sensitive topics. Don’t be offended if certain topics are suddenly off the table. 

 

  • Avoid saying hurtful things or sharing information that will increase their stress. They are already dealing with a lot, and negative comments can impact their mood, stress level, and treatment response.

 

  • Don’t be afraid to joke and laugh with your friend (of course it goes without saying to not joke at their expense). Cancer creates some really ridiculous situations, so be ready to laugh at yourself for doing or saying something dumb. It will happen, so just own it.  

 

  • There will be moments of silence. Embrace those moments, learn to become comfortable with them, and realize that sometimes silence is what your friend wants…with you by their side. Silence is an opportunity to reflect, empathize with your friend, and appreciate your friendship. Many of our Talking Tips come from moments where a friend is trying to break the silence or console a friend, and it backfires. 

 

  • Know when it’s time to wrap things up. Your friend may not want to hurt your feelings and tell you it is time to leave. Be on the lookout for cues (or agree to an end time in the beginning so it doesn’t feel personal on either side). 

 

  • Keep it fresh and interesting. Find ways to learn, grow, and create new memories together. Consider planning a topic to discuss or an activity to do in-between visits (or get the materials in advance for your next visit). 

 

  • Schedule a regular time to meet or connect. It will give both of you something to look forward to and plan for.

 

Moving forward together

We highly recommend watching Hernan Barangan’s “My Friend Has Cancer” six-part video series about what to do and what to say when your friend has cancer. Hernan is a cancer survivor and director of the film Cancer Rebellion. His helpful and entertaining videos bring together survivors and supporters for a weekend getaway, sharing insights and perspectives on how to interact after a cancer diagnosis, during treatment, and beyond. Seize the Awkward also provides some great tools and tips for getting the conversation started for young adults struggling with depression, anxiety, and other mental health issues.

 

 

At the end of the day, all your friend wants and needs from you is compassion, connection, and normalcy. If you know what kind of support your friend desires, you can ensure they receive it. Here are some suggestions for how to move forward together. You can do this! 

 

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You Just Found Out Your Friend Has Cancer – Now What?

Most young adults never expect to hear the words “I have cancer” come up in a conversation, and they feel totally unprepared when it does. The news that your friend has cancer feels scary and overwhelming, but it is important to approach the news with courage and compassion. Life is upended, and your friend needs you now more than ever. Your presence will give them the stability they need as everything else around them changes. With a shared understanding of what is ahead and the support your friend desires, you will ensure your friend receives the support needed during treatment and beyond. Here are some suggestions for how to move forward together.

Step 1: Understand what’s ahead

 

  • Every person responds differently to the news, and not everyone wants to share it with others. When your friend with cancer shares their diagnosis with you, it means they trust YOU with that information, so be sure you understand and respect their privacy wishes. Sharing the news with the wrong people can impact relationships, work, school, and even insurance.

 

  • Depending on the cancer stage of cancer at diagnosis, treatment may start immediately or there may be a few weeks before it begins. It may require an extended hospital stay (inpatient), or your friend may be commuting to the hospital intermittently for procedures (outpatient). Your friend’s support needs will vary depending on their care plan as well as how they are feeling on a given day in response to treatment.

 

Step 2: Learn how your friend wants to be supported

 

  • Connection, support, and normalcy are the things your friend needs from you. Stay authentic to your relationship and remember that the diagnosis has not changed who your friend is on the inside.

 

  • When asking how you can help, your friend may not have an answer. That is okay. Sometimes just listening and providing a safe space to process their emotions is all they want. Needs may come up naturally in the conversation. If they are looking for answers or inspiration, help them find it. If questions come up, write them down so your friend can ask the medical team later. If there are resources you think might be helpful, share those when the time feels right. Be careful to not be that person that pushes all of your beliefs on them. Respect their choices and decisions and offer recommendations only when asked. Help comes in many forms, so find positive and meaningful ways to make their day better.

 

  • Clear communication of needs is key, but it is humbling to ask for help and is sometimes hard to know what to ask for in the beginning. Having to come up with needs may lead to added stress. Offering specific items or help will ease the burden of asking, but remember to give them room to decline your offer without taking offense. They may just not be ready to receive what you are offering on that day. It is not personal.  As they get more comfortable asking for and accepting help, offering and providing support will get easier.

 

Step 3: Work together to establish a support network

 

  • It is important to organize the peer support network early and emphasize the importance and impact their support will have on your friend’s quality of life.  The first few weeks after diagnosis is often when many friends and peers will fade away, never be heard from again. Reinforcing how they make a difference may help motivate them to stay connected. 

 

  • If you or your peers are struggling with showing up, find the help needed to work through it. Remember you don’t have to do something big to be in someone’s life and make a difference. If you can’t get past it, let your friend know you are struggling. Honesty and authenticity are so important during this time and assure your friend you are not abandoning them.

 

  • Create a group chat so you can stay coordinated and reach out to each other as needed. Make sure everyone is on the same page with the privacy guidelines.

 

  • Find a tool that best meets the needs of your friend and the support network. There are several online tools available to help support networks stay connected, including b-there, a connection tool designed specifically for young adult cancer patients. Other tools available include CaringBridge, MealTrain, Lotsa Helping Hands, and IanaCare. Whatever works best for your network and will help you stay connected and consistent is what you should use.

 

  • The more supporters that can stay connected, the more likely consistent support can be achieved. Your friend won’t always want or need support, but being there when support is needed is vital to their quality of life. As we have learned from COVID-19, presence is more than being in the same room. There are many ways to connect without being in the same place, and just showing up, in person or virtually, makes a big difference. 

 

 

Step 4: Be consistent and committed

 

  • If you have a busy schedule with many competing priorities, commit to a regular check-in routine, and put a reminder on your calendar. This will help you stay consistent, and your friend will appreciate the assurance that they are not alone. 

 

  • Put the device down when you are together (unless you are using it to enhance your conversation)

 

  • LISTEN without distractions or judgment.

 

 

  • Embrace the silence when there is nothing to say, and acknowledge when you don’t know what to say. 

 

  • Every day will be different. Depending on the cancer treatment, how your friend is feeling, and what other life stressors exist, some days will feel normal, and others will be a struggle for your friend. Try to understand their current emotional and physical state so you can find ways to best support them.

 

  • If you are unsure how to help during certain situations, there are resources that can help you work through the challenges and stay committed. If you need peer to peer support, options include Imerman Angels, GRYT Health, Cancer Lifeline

 

  • Don’t give up. Your friend may not be feeling well enough to answer your text or call, but know that they read and hear them all and appreciate you checking in.

 

Step 5: Take care of yourself too

 

  • You have to be present with yourself before you can truly be present for others. If you are feeling stressed, anxious, or tired, be sure you are making time to recharge and heal.

 

  • If you are feeling sick, remember you can be a health risk to your friend. Find an alternate date to hangout or a different activity, so you can keep them safe. Even if you can’t be with them in person, there are many other ways to be present. It is about finding balance, making time when you can, and prioritizing your friend’s needs when you know they need you.

 

  • There will be times when you need to talk and process your feelings to keep your own mental health in check. It’s important to avoid venting your frustrations to the person that is undergoing treatment. They are probably already feeling like a burden. Don’t be afraid to ask for help from a therapist, friend, counselor, trained social worker, or other trusted confidant (always remembering your friend’s privacy wishes). Unresolved emotions can build up and will affect your ability to support, so make sure you find the person or activity that gives you some relief.

 

Step 6: Make the best of every moment together

 

  • Make the time to be present when they need you, give them space when they need it, stay flexible, and be understanding when things do change.

 

  • Take turns answering the question “How are YOU doing?” (One-word answers don’t count 😉). It can be easy to forget that both the survivor and supporter are going through a difficult time. Allowing each to feel like their experience matters can bring you closer together.

 

  • Recreate old memories to provide comfort and a sense of normalcy.

 

  • Create new memories and traditions that you can plan and experience for the first time together.  

 

  • Find activities that you can do/learn together and keep the conversation fresh (yoga, music, art project, webinar, mini book club, etc). 

 

  • Find forgiveness when emotions flare. Life is too short to hold grudges. Work through it, learn from it, and move forward. If it helps, have a favorite picture of the two of you handy—it will remind you of how great your friendship is and can help pull you through the challenges.

 

  • We are never guaranteed tomorrow, so don’t put off a visit or connection because “something better” came up. Think of it this way, ten years from now, will you remember a meaningful one-on-one night with your friend that needed you or the Friday night party? If you choose to go to the party instead, be honest with your friend and have the courtesy to cancel or reschedule. Tables turned, what would you hope your friend would do?

 

Let us know your thoughts. If you didn’t find the information you were looking for, please don’t hesitate to contact us with any questions you have. We’re here to help.

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Amy Schneider – Oncology Nursing Month Highlight

Oncology nurses are there to explain the diagnosis to patients and their families and be their guide through treatment. They are there to celebrate the wins and provide comfort when the road gets rough. Their commitment, dedication, and endless compassion for their patients deserve to be recognized. To end Oncology Nursing Month, we wanted to recognize one of our own. Today, we’re celebrating you, Amy Schneider.

Amy Schneider SOMBFAB

Meet Amy Schneider

Amy Schneider, B.S.N., R.N., CHPON, is a Case Manager for Cancer Survivorship, founder and facilitator of AYA Support Group Some Of My Best Friends Are Bald, and a member of b-present’s Advisory Board. She has been at the Peckham Center for Cancer and Blood Disorders at Rady Children’s Hospital in San Diego for 33 years.

“When I started working in the clinic, it was apparent that there was very little in place specifically for our adolescent population. And here we are 30 years later still and always working on this. I have always loved working with that age group and our child life specialist at the time, and I started SOMBFAB. We will be 30 years old in April!”

What is SOMBFAB?

SOMBFAB, or Some Of My Best Friends Are Bald, is a support group for teens and young adult cancer patients and their siblings that focuses on life-lasting friendships and creating memories to last that lifetime and beyond. They provide a ton of age-appropriate activities and experiences that give AYA and their siblings a wonderful place to connect. With the recent pandemic, SOMBFAB is facing the same challenges that everyone has—not being able to connect in person. For the duration, they started ZOOMBFAB, where everyone is virtually connecting via Zoom twice a month to keep the thread of connection going during this difficult time.

sombfab BLUE logo

Her “Day Job”

Amy is in charge of coordinating care for almost 700 cancer survivors who are active with Rady Children’s Hospital, and her database has nearly 1300 people on it (this includes survivors that have moved on to adult care or moved away, etc.).

“It has always been my goal to make each patient feel just as important as they did on day one, no matter how far out treatment they are! Their Thriving After Cancer Clinic is a multidisciplinary clinic that helps our survivors move forward and Live Their Best Life. It is always an incredible blessing to do the work you feel you were born to do. I feel as though SOMBFAB is my life’s work. We have enhanced the lives of countless AYA.”

Learn more

The Support Report with b-present – How Support Changes Lives

Our new podcast launches in 3…2…1! Tune into The Support Report with b-present hosted by our very own Justin Peters. We will be sharing real stories from young adults and dive deep into how support changed their lives. We’ll explore their challenges, triumphs, and everything in between. We’re here to inspire, entertain, and empower you to create your own stories of support and presence for others within your community.

The Need

Now more than ever, people are experiencing the need to connect and realizing how much it hurts when we are not. We need to know that we are not alone in our struggles and that there is someone beside us we can lean on, laugh with, and learn from. However, providing support is not always easy, and the moments when it is needed most may also be the moments we have to dig the deepest to get through. But know this…

Those moments matter. 

 

When a young adult faces a life-altering experience, their health becomes dependent on the presence of others. Whether it is a diagnosis, loss of a loved one, mental struggles, or grief, support is needed. Having supportive people in our lives helps us through tough moments so we can enjoy moments of relief, joy, and hope. 

Let’s talk about it

The Support Report exists to help you develop empathy and compassion that leads to improved connections. We want you to self-reflect and apply what you learn to become better supporters for the future. And we want to inspire you to create change in your own lives and communities, by volunteering your time and talent, advising or starting organizations, and creating products or services that solve problems you have experienced or have the means to solve. While we may not be able to change the past, we can learn from others’ experiences and find new ways to be present with purpose and change the future for those that need us.

Want to be featured on The Support Report?

So how has being a supporter or receiving support changed your life? We’d love to share YOUR story. Email us at [email protected] so we can start the conversation!

 

Losing a Sibling to Cancer — The Struggles with Moving Forward

For siblings, who often share a deep bond, a cancer diagnosis can really hit hard as life turns upside down for both of them. It’s one day at a time, powering through, delivering support and trying to help preserve normalcy in the midst of an anything-but-normal situation. The pain and worry are often well hidden as they strive to put on a brave face for each other and enjoy the present as best they can. And when a sibling doesn’t survive, the brave face often continues as the bereaved struggle to reimagine what life even means without their loved one there and the impact on their own future. 

 

One of many things you’ve taught me is surviving isolation. Days and nights in a hospital room for months at a time, in the moment time just passed by. We spent our time building legos, playing Mario Kart, making puzzles, playing cards, painting, walking the hallways, making fun of each other, at times fighting….honestly anything seemed fine confined within those walls as long as we had each other. Kinda wish quarantine consisted of you keeping ME company, but I’m glad you are away from this world at the moment. I would have been terrified for you.

Anyways, the past three months have been spent sick trying to find health insurance and giving into the help I need. Next month starts a new chapter in my life with a new doctor and going back to therapy, not the way I expected things to go, but I thought of you and knew you’d probably want me to stop being prideful and kind of cowardly and face my fears head-on. I haven’t even processed the loss of friends and just came straight home from funerals to work nonstop until now I’ve had time to feel my body and mind struggle. I guess this moment in time where the world is at a pause was what I needed to realize the lord is telling me to just be still…and start to take care of myself again.” — Estefania Olivera

 

Ruben Olivera (left) and his sister Estefania Olivera

The Healing Process

The stigma of loss among young adults can make it particularly challenging to verbalize these emotions, depriving them of part of the healing process. As part of the AYA cancer support community, let’s all remember how important it is to make room for young adults to grieve, process, and talk about their loss, concerns, and struggles. Comfort and healing are facilitated by just listening. And most importantly, remember to keep their sibling’s memory alive in conversations that celebrate how they lived, the things they taught us and the light they brought into our lives. It should never feel like we have moved on, but instead, it should feel like we are moving forward…together. 

Supporter Talking Tips –  Did You Really Just Say That Out Loud?

“What is the worst thing someone said after I was diagnosed? Hmm…do I have to pick just one answer? There are so many!” —Anonymous 

We asked a room full of young adult cancer patients and survivors what the worst thing someone ever said to them after they were diagnosed and some of their answers about knocked our socks off.

  • “Too bad you just dyed your hair.”
  • “Is your disease contagious?”
  • “Everything happens for a reason.”

Did they really say that out loud? When we don’t know what to say to someone to comfort them, things can get kind of awkward, and it’s easy to say things that we think are helpful when in reality, they are unhelpful and sometimes even offensive. Often, we might not even know that what we said was wrong because our friend is too nice to call us out.

The b-present Foundation’s Supporter Talking Tips are designed to help supporters avoid saying things they might later regret…because no one wants to join the “Did You Really Just Say That Out Loud?” Club.

The b-aware Program

Our b-aware program focuses on educating young adults on the importance of presence and empowering them to support their friends through thick and thin. By sharing other perspectives and lessons on how to express and provide support with our community now, they will be prepared to be strong supporters whenever their friend needs them most.

Supporter Talking Tips

We feature monthly Supporter Talking Tips across our social media channels. Our goal in creating these tips is to show the helpful and unhelpful way things can be said. Many of the tips we share are cancer-focused but can apply to a variety of life situations. Every tip is based on a real story or situation that at least one cancer patient (and often many) has experienced.

The tips are presented in a side-by-side graphic with an unhelpful phrase on the right and a helpful phrase on the left so readers can see just how easy it is to adjust their choice of words to ensure a positive outcome. The unhelpful reflects the thoughtless comments typically said in awkward small talk or when projecting our opinions on their situation. In contrast, the helpful reflects empathy and understanding of the current physical and emotional state of the cancer patient.

 

 

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Be real

Finding the right words is not always easy. Think of it less as finding the “right” words, and more as finding the best words in that moment. Candy-coating or avoiding topics altogether, in general, is unhelpful. Have the courage to engage in the topics they want to discuss. Sometimes just acknowledging the reality of the situation without being judgemental or dismissive makes a huge difference. Become comfortable with saying “I don’t know what to say” because at least you are being honest. Listening is often a good alternative and in some cases, better than saying anything.

Even with all the tips in the world, we will still make mistakes. When that happens, own it, apologize, and, if appropriate, have a laugh about it. Talk about how to fix it for next time. Then move forward…together.

Have a tip to share?

Now is your chance to have an impact on future supporters and patients. We would love to share your story and feature your talking tip on your social media! Anonymous or acknowledged—it’s all up to you.

Part of the dreaded “Club” and wish you could go back and change something you said? This is your chance for a do-over. Were you on the receiving end of an eye-rolling remark? This is your chance to fix it for all future supporters and cancer patients. Share with us here!